Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
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Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We'll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into...
Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
Are you in Connecticut, Delaware, Florida, Georgia, Maine, Maryland, Massachusetts, Michigan, New Hampshire, New Jersey, New York, North Carolina, Ohio, Rhode Island, South Carolina, Vermont, Virginia, or West Virginia? Then this monthly Zoom is for YOU! We meet on the second Wednesday of every month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82342279368?pwd=bylRwbisWn17EkorhfEgGiFMt9wLUT.1
Join us for our Men's support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA