Calendar

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Events

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  • support group image of a heart with hands.

    CCM Support Group

    CCM Support Group
    Virtual Event

    Please join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a...

  • CCM Coffee Hour, photo of a latte and pastry

    Virtual CCM Coffee & Support

    Virtual CCM Coffee Chat
    Virtual Event

    Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to...

  • Anatomical illustration of the human brain highlighting the brainstem, with an inset showing a cavernous malformation. Includes an MRI scan displaying a brainstem abnormality. Text reads: “Alliance to Cure Cavernous Malformation – Brainstem Group – Last Thursday of the month.” Designed to promote a support group for individuals affected by brainstem cavernous malformations.

    Brainstem Group

    Brainstem Group

    Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern,...

  • support group image of a heart with hands.

    CCM Support Group

    CCM Support Group
    Virtual Event

    Please join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a...

  • Writer's Club text with a pen and books

    Writers Club

    Writers Club

    Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing....

  • image of a rainbow zebra reading a book. Text is repeated elsewhere on page.

    Rare Disease Day Book Club

    Join us for our 2nd Annual Rare Disease Book Club! We’ll be reading Stroke Pizza for our Rare Disease Day Book Club on February 28th. This is a compilation written...

  • three zebras playing a board game. text is repeated elsewhere on the page.

    CCM Kids PJs and Play for Rare Disease Day

    Join us for a fun virtual pajama party and game night just for kids in the CCM community! We’ll play kid-friendly interactive games and maybe even a scavenger hunt or...

  • rainbow zebra with magnifying glass. Text is elsewhere on the page.

    Rare Disease Day Escape Room and Cozy Hangout

    Join us at 8:00 PM on Rare Disease Day - February 28th For a fun evening! We'll be doing a virtual escape room. We’ll work together to solve puzzles, crack...