Help us learn more about CCM Care by sharing your experience through a 5-minute survey

We are happy to introduce the Alliance to Cure Cavernous Malformation CCM Clinic Experience Check-In!

The CCM Clinic Experience Check-In is a brief survey to capture data about your CCM-related healthcare experiences in the past six months (January to June 2025). The goals of the survey are to:

  1. Collect community feedback about Center of Excellence (COE) or Clinical Center performance and barriers to care.
  2. Identify opportunities to improve patient experience and increase access at COEs and Clinical Centers.
  3. Highlight the impact of the COE and Clinical Center program.

Please complete this 5-minute survey, whether or not you have been to a CCM Center of Excellence or Clinical Center in the past six months. We may share anonymized responses with the Centers of Excellence or Clinical Centers to improve patient experience. If your responses are shared, the Alliance to Cure will make every effort to protect your identity. Participating in the survey will not impact the care you or your loved one receives at the COEtext on image: help us learn more about CCM care but sharing your experience. drawing of two women taking a surveryThe survey will close on Monday, July 14, 2025.

If you have any questions about this survey, or if you would prefer to schedule a phone call to share your experience, please contact katie@alliancetocure.org.