2025 CCM Patient Conference
Join us on November 6th-8th for our 2025 Patient Conference in Atlanta, GA. Thursday, November 6th is optional, but it will be a great afternoon if you’re able to attend. Thursday…
Events & Opportunities
Check out our calendar for support groups, webinars, online informational sessions, and fundraising events.
Interested in hosting an event? Click below!
Watch Past Webinars on our YouTube Channel
Did you know you can catch up on most of our past webinars and many patient conference presentations on our YouTube channel anytime? This is a link to our recorded…
CCM 101
CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness…
CCM Patient-Expert Course
Be recognized for what you know! Alliance to Cure Cavernous Malformation patients and families often become experts in cavernous malformation (CCM) out of necessity. Alliance to Cure Cavernous Malformation offers…
Update Your Cavernous Malformation Patient Registry Profile
Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help…
