CCM Patient Story Featured in HuffPost
A Dad Tried To Bully Me Into Giving My Seat To His Kid. Here’s What Happened When I Said No. “I’ve realized that my right to advocate for myself isn’t…
A Dad Tried To Bully Me Into Giving My Seat To His Kid. Here’s What Happened When I Said No. “I’ve realized that my right to advocate for myself isn’t…
Join us on November 6th-8th for our 2025 Patient Conference in Atlanta, GA. Thursday, November 6th is optional, but it will be a great afternoon if you’re able to attend. Thursday…
As published in Nature Biomedical Engineering on Tuesday, UVA’s focused ultrasound study revealed that focused ultrasound stops the growth of cavernous malformations in mouse models. We first heard this exciting…
We are happy to introduce the Alliance to Cure Cavernous Malformation CCM Clinic Experience Check-In! The CCM Clinic Experience Check-In is a brief survey to capture data about your CCM-related healthcare experiences in…
Cavernous malformation was recently featured on KRQE News 13 in New Mexico during a Patient Conference hosted by University of New Mexico. The segment helped raise critical awareness about this…