By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.
2025 Year End Message from CEO Connie Lee
Year End Message from CEO Connie Lee Every dollar you donate goes directly toward moving the cure forward. Watch this 6-minute video from Connie Lee on the promising CCM treatments in development and visit alliancetocure.org/donate by 12/31 to have your gift matched 2x,...
MoreDriving a Cure
Watch the Driving a Cure Video. See how your support accelerates the breakthroughs leading us...
MoreYour year-end gift will be doubled!
A generous member of our community is matching all gifts up to $30,000 through Dec....
More
What is cavernous malformation?
Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. CCM can lead to strokes, seizures, and other neurological damage. Surgery is the only current treatment. CCM affects more than 3 million children and adults worldwide.
More
Our Story
When we were founded in 2002, there was a void of cavernous malformation (CCM) research and information. Over the last 20 years, we have seized opportunities to bring scientists, patients, doctors, and industry partners together to advance a cure for CCM. Our work has driven research breakthroughs and improved patient care. We now have promising treatments just under five years away. We will persevere until we have a permanent cure for CCM – available, accessible, and affordable for all.
MoreGet Involved
