Legislative Advocacy


Dear Friend in the Fight Against Cavernous Angioma,

Thank you for your interest in getting involved to sustain our mission to inform, support, and empower individuals affected by cerebral cavernous malformation (CCM, cavernoma, cavernous malformation) and drive research for a cure.  It is only with friends like you that we can continue to expand our mission.  There are many ways for you to volunteer, either virtually or in your community.

We have ongoing, virtual volunteer opportunities with Alliance to Cure Cavernous Malformation.  You can volunteer to support our mission from the comfort of your own home!  Please reach out to info@alliancetocure.org so we can discuss how you can participate.  You can also fill out the Volunteer Interest Form to give us a little more information.

The CCM-CARE Act of 2019 offers a way for us to increase awareness among US legislators. Please get involved in advocacy to help us increase care and research funding.

You can also volunteer within your local CCM community through our Community Alliance Initiative!  Community Alliances are tasked with organizing grassroots fundraising, support, education, and awareness initiatives in their local communities to support the Alliance to Cure Cavernous Malformation mission.  We have groups throughout the nation who connect, collaborate, and support each other!  Learn more about our Community Alliances!

Updated 6.13.20