February 15, 2023 –Recursion Pharmaceuticals has twelve US sites enrolling cavernous malformation patients in Phase 2 of their REC-994 Sycamore trial. This is the first industry-sponsored trial of a medicine for cerebral cavernous malformations, a massive milestone toward better treatments. The most recent site to open is Emory University in Atlanta. Please visit our website’s…
Please join us in thanking our incredible card-writing team: Alexa Horeff, Lauri Smalley, Jaclyn Tobin, and Amy Chick. Our dedicated card writers share their skills and their lovely handwriting with us by writing cards to thank our donors for their support. Thank you for all you do for our community.
Learn more about how clinical trials work, check out some Myths vs Facts and get your questions answered with our FAQs. Still have more questions? Reach out at ClinicalTrials@AllianceToCure.org
Please join us in thanking David Meyer for sharing his excellent photography talents with our community at the Scientific Meeting and Patient Conference in November. David is an active member of our community and has been a tremendous support to many of our members. Thank you, David for all you do for our community.
Eloquent” is our first-ever documentary about patients and families dealing with the ups and downs of a cavernous malformation diagnosis. Their stories will both pull at your heartstrings and inspire you! Also, hear from our experts, who deliver a hopeful message to anyone on this challenging journey. Watch award-winning and film festival winner, Eloquent.