Join our 3rd Annual Arizona Walk to Support the Alliance to Cure Cavernous Malformation! Together, we can make a profound difference in the lives of those affected by Cavernous Malformation. Let’s come together as a community and show our support for the Alliance to Cure Cavernous Malformation. Enjoy the company of friends and family for…
Please join us in thanking our September Volunteer of the Month, Nicole Clayton. Nicole is a caring community member, always eager to support other members. She helps to moderate our Facebook group. She is always willing to lend a helping hand, for instance when we need help creating video clips or are seeking patient stories,…
In case you missed it, you can watch the recording here: https://youtu.be/OTM3IhICxOg Join us on September 28th at 7:00 pm Eastern, 4:00 pm Pacific time for our monthly webinar. This month, we will discuss Tools to Talk to your Kids about Cavernous Malformation and read the new book Bizcochito. Presenters are Nicole Clayton, Licensed Professional…
We are thrilled to recognize Rachel Paverman as the August Volunteer of the Month! Rachel is one of our go-to people when we need a hand with practically anything. From starring in our documentary “Eloquent” to supporting other community members, Rachel regularly goes out of her way to help. Most recently, Rachel has taken on…
The June 2023 newsletter, full of research and events information, is out. Read about new medicines coming into trials, our upcoming family conference, Empower 2023, and more. Read it here
