ABC Australia featured us in a news story about CCM1 patient Jeffrey Passlow, a patient-expert and member of our online support group. We are grateful for Jeffrey’s commitment to supporting fellow patients. Learn more about our support groups.
“Biscochito,” our first children’s book, is a delightful tale written by the talented author Aditi Kantipuly and brought to life through the enchanting illustrations of Luz Adriana Manozca. This heartwarming children’s story is told by two special individuals, Colton Arnett and Atiana Tenorio, who are the voices behind the book and patients of cavernous malformation…
Join us on the course for a fun day of golf and community, benefiting Alliance to Cure Cavernous Malformation. The format of the golf scramble is such that each golfer on the team hits a tee shot. The team then selects the best tee shot and all four golfers hit their next shot from that…
Join us for a Big Picture Update on Guidelines, Trials, and Biomarkers with Dr. Issam Awad from the University of Chicago Medical Center: Thursday, February 22nd, 2024 at 7:00 pm ET/4:00 pm PT. This webinar was recorded and can be viewed here.
Because of you, 2023 has been a year of significant progress! 2024 looks to be even more promising. Check out Connie Lee’s End of Year letter for highlights from this past year and read what’s coming next! End of Year Letter
