Current News & Updates

Dr. Awad Presents a Trial Upate and Q&A Session

Dr. Issam Awad, MD, MSc, FACS, founding Chairman of the Alliance to Cure Cavernous Malformation Scientific Advisory Board & John Harper Seeley Professor of Neurosurgery and director of Neurovascular Surgery at the University of Chicago will update the Alliance to Cure Cavernous Malformation community on the Atorvastatin Clinical Trial. The session will conclude with a…

  CCM2 exon 2-10 deletion research, led by Alliance to Cure Cavernous Malformation families and Duke University, has identified a new founder mutation. Read coverage in the Atlantic magazine. The collaborative work done by families affected by the CCM2 exon 2-10 deletion, a very specific form of the illness, is bringing CCM visibility and understanding to…

Baptist Medical Center and Wolfson Children’s Hospital Recognized

Alliance to Cure Cavernous Malformation has recognized Baptist Medical Center and Wolfson Children’s Hospital in Jacksonville, Florida as CCM Clinical Centers. CCM Clinical Centers provide integrated multi-disciplinary care to CCM patients, following the CCM Clinical Care Consensus Guidelines developed by the Alliance to Cure Cavernous Malformation Scientific Advisory Board.   Announcement from Baptist Medical Center…

CCM-CARE Act Introduced

On December 14, 2021, Senator Ben Ray Lujan, and Senator Martin Heinrichs from New Mexico introduced federal legislation called the CCM-CARE Act of 2021. It is known as Senate Bill 3390. The legislation calls for increased funding of research and care for cerebral cavernous malformations (CCM) and prioritization of the illness by the Food and Drug…