Current News & Updates

Message from CEO Connie Lee

Message from CEO Connie Lee Watch this 6-minute video from CEO Connie Lee on how the Alliance to Cure Cavernous Malformation is advancing promising cerebral cavernous malformation (CCM) treatments. Our…

The Baca Legacy: Tracing a 400-Year Genetic Story of CCM in New Mexico

Current News & Updates

A 400-Year Legacy: How One New Mexico Family Helped Uncover a Genetic Link to CCM The story of cerebral cavernous malformation (CCM) in New Mexico begins centuries ago — with…

CCM Cure Magazine (Fall 2025)

Current News & Updates

Check out the inaugural edition of our magazine, CCM Cure, to learn how the Alliance is driving a cure and improving lives for all affected by cavernous malformation (CCM). Read…

Sakura’s Story: A Family’s Journey with Cavernous Malformation

Current News & Updates

A tumble on the soccer field changed everything for the Tafoya family. When scans revealed that 4-year-old Sakura had a cerebral cavernous malformation, clusters of fragile blood vessels in the…

Turning Science Into Story: How a Children’s Book Is Teaching New Mexico Families About CCM

Current News & Updates

Physician and artist Dr. Aditi Kantipuly believes that complex science can be made understandable — and even beautiful — through creative storytelling. While training in preventive medicine in Canada, she…

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