Please also see our Calendar for a complete view of what’s in store.
Join us in recognizing the volunteer efforts of Amber Brown and Allison Mintz, our Volunteers of the Month for April! Their dedication and enthusiasm have breathed new life into the Greater DC Alliance to Cure group. Through their efforts in organizing engaging get-togethers like a holiday potluck and a Rare Disease Day event, Allison and…
Interested in learning more about volunteering for the Alliance? We’re planning a casual meeting to learn what volunteer gigs interest our members, what skills folks have, and how we can connect you with volunteer opportunities you’ll enjoy and find fulfilling. When: Mar 9, 2023 07:00 PM Eastern Time (US and Canada) Register in advance for…
Get a behind-the-scenes look at the impact of our cavernous malformation community, how your contributions have helped, and why a cure is within our reach. Some of the highlights include: The founder’s story A look into the future of Alliance to Cure Cavernous Malformation A day in the life of a few of our patients…
Help the Alliance to Cure Cavernous Malformation Community by sharing a recipe for the 2nd Edition of the CCM Healthy Cookbook! In light of new research indicating that diet, specifically emulsifier and artificial preservative use, has a negative effect on the gut lining and cavernous malformation health, we are soliciting recipe submissions for a cookbook…
Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous malformation and how to treat the illness. Every profile helps! Each registry profile adds to our body of knowledge….
