Newly Diagnosed

Welcome to Alliance to Cure Cavernous Malformation. We hope to provide you with the information and support that you need to understand your cavernous malformation (cavernoma, cavernous malformation) diagnosis and make treatment decisions.

What’s in a name? Cavernous angioma, cavernoma, and cerebral cavernous malformation (CCM) are synonyms for mulberry-shaped abnormal blood vessels in the brain or spinal cord.

The Newly Diagnosed section of our site provides the basic information everyone should know about cavernous malformation:

Fast Facts offers the 5-minute version of our information with a printable to share with family and friends, teachers, and others who are interested.

The 2023 update of our Patient Booklet provides a deeper introduction to the symptoms and treatment of cavernous malformation, including illustrations and patient stories. It’s also printable.  20 Questions Answered has similar content and is also available in Spanish and Portuguese translations.

Next, you’ll find a helpful list of Questions to Ask Your Doctor during your next appointment.

Other menu choices lead you to Care, Community, and Research.

Finally, we offer our Clinical Care Consensus Guidelines and a Glossary of medical terms associated with cavernous malformation.