Patient Participation

Rhythms of Hope

September 7th, 2024 Join us for a spectacular evening of music and unity with our nationally broadcast virtual concert, where artists will perform live to raise funds and awareness for cavernous malformation research and support. Experience an unforgettable night from the comfort of your home or attend one of our in-person events, featuring local performances,…

June Webinar: Managing Seizures with Aria Fallah, MD, MS and Samuel S. Ahn, MD

Join Aria Fallah, MD, MS, and Samuel S. Ahn, MD, from UCLA for a webinar on epilepsy. We will discuss treatment options, types of Seizures, and seizure first-aid strategies. When: Jun 13, 2024, 07:00 PM Eastern Time (US and Canada) Register for the webinar here: https://us02web.zoom.us/webinar/register/WN_HjTj0JaEROu9MJtFwZOsHw After registering, you will receive a confirmation email containing…

New Patient Registry

We are excited to announce that we have updated our patient registry to a new platform! There are two options to create an account in our new registry: Patient account-this is for affected individuals 18 years or older Caregiver account-this is for parents or legal guardians of a minor-age affected person OR a legal representative…