Impact Report 2023
Your generosity has made a difference! Get the full 2023 Impact Report here
Your generosity has made a difference! Get the full 2023 Impact Report here
We are excited to announce that we have updated our patient registry to a new platform! There are two options to create an account in our new registry: Patient account-this is for affected individuals 18 years or older Caregiver account-this is for parents or legal guardians of a minor-age affected person OR a legal representative…
September 7th, 2024 Join us for a spectacular evening of music and unity with our nationally broadcast virtual concert, where artists will perform live to raise funds and awareness for cavernous malformation research and support. Experience an unforgettable night from the comfort of your home or attend one of our in-person events, featuring local performances,…
Join us at our 2024 Patient Conference on July 26th! You will have an opportunity to meet and mingle with patients, as well as learn from top CCM researchers. More details coming soon! We also have social activities lined up for anyone planning to stick around on Saturday. Location: SickKids Hospital Peter Gilgan Centre for…
We are thrilled to announce that the Phase 2 safety trial of Recursion’s REC-994 medicine, being developed specifically for symptomatic CCM, has fully enrolled 60 patients ahead of schedule. Our thanks to all of our members who are participating in this first-ever industry-sponsored trial. You made this enrollment a success, and we are so proud…