Alliance to Cure Cavernous Malformation manages the International Cavernous Malformation Patient Registry, specifically designed to facilitate study recruitment.
We can search our registry database on your behalf to contact those individuals most likely to meet your inclusion criteria. We will provide information about your study to these individuals. Contact coordinator@alliancetocure.org to access this service.
Additionally, did you know our registry platform also has a researcher portal? Approved researcher applicants can view our self-reported de-identified database. For more information and to apply for access, visit the REGISTRY.
Reviewed 3.26.23