Participate in Trials

Researchers have also begun to include humans in cavernous malformation studies, which is known as clinical research. These clinical studies can help us understand how the illness affects people over time (natural history studies) or can assign volunteers to groups that receive health-related interventions to compare their effectiveness (clinical trials). These research studies require human participants like you.

The links at the bottom of this page will direct you to more information related to a variety of research topics, including study participation, information about the progress of treatments under development, breaking news, and an overview of active research studies around the world.

Everyone with a cavernous malformation in the brain or spinal cord is encouraged to join the Alliance to Cure Cavernous Malformation Registry to receive personalized notifications about new research and to add to our understanding of the illness. Registering takes only 20 minutes.

Clinical Trials Myth vs Facts Videos:


Last updated 8.22.23