Events & Opportunities

Please also check our Calendar for a complete view of what’s in store.

Celebrate Rare Disease Day With the Alliance

Join us Feb 26, 2023 02:30 PM Pacific Time, 5:30 Eastern Time Register to join us:–trzgqHdwu4vLzz8JraI9DjEGJNxwt We will have a breakout room for children and family activities and another room for adults. This event is casual and fun. Expect to have some laughs getting to know others affected by cavernous malformation and celebrating Rare Disease…

Webinar: Ask the Alliance

This webinar was recorded and can be viewed on our YouTube channel: Join us Thursday, February 23rd at 7:00 pm eastern, 4:00 pm pacific for our first ever “Ask the Alliance” Webinar! What questions do you have about the Alliance, CCM research, fundraising, centers of excellence, support opportunities, advocacy or anything else alliance or…

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