Please also check our Calendar for a complete view of what’s in store.
Please join us in thanking our September Volunteer of the Month, Nicole Clayton. Nicole is a caring community member, always eager to support other members. She helps to moderate our Facebook group. She is always willing to lend a helping hand, for instance when we need help creating video clips or are seeking patient stories,…
Join us September 28th at 7:00 pm Eastern, 4:00 pm Pacific time for our monthly webinar. This month, we will discuss Tools to Talk to your Kids about Cavernous Malformation and read the new book Bizcochito. Presenters are Nicole Clayton, Licensed Professional Counselor and Wife and Mother of CCM patients and Darla Clayton, Clinical Psychologist,…
We are thrilled to recognize Rachel Paverman as the August Volunteer of the Month! Rachel is one of our go-to people when we need a hand with practically anything. From starring in our documentary “Eloquent” to supporting other community members, Rachel regularly goes out of her way to help. Most recently, Rachel has taken on…
Cincinnati Children’s is excited to host a family conference on August 5th from 12- 2 pm ET, featuring presentations from their top experts in CCM care, including special guest Connie Lee! After the conference, enjoy CCM family night at the Cincinnati Reds baseball game starting at 4:10 pm ET! Reserve your tickets for the game…
Please join us on Thursday, July 20th at 7 pm ET, 4 pm PT for a webinar on neuropsychology basics. Bring your questions! We’ll talk about the basics of neuropsychology, how it can help cavernous malformation patients, and offer general suggestions to help manage some of our patients’ more prevalent neuropsych difficulties. Register here
