CCM2 exon 2-10 deletion research, led by Alliance to Cure Cavernous Malformation families and Duke University, has identified a new founder mutation. Read coverage in the Atlantic magazine. The collaborative…
Patient Participation
Alliance to Cure Cavernous Malformation Receives $600,000 Award from the Chan Zuckerberg Initiative to Advance Rare Disease Research
CHARLOTTESVILLE, VA (November 3, 2021) — Today, the Chan Zuckerberg Initiative (CZI) announced $13 million in funding for 40 patient-led, rare disease advocacy organizations that are working alongside researchers and…
Update Your Cavernous Malformation Patient Registry Profile
Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help…
