Webinar – From Connie’s Kitchen Table to the Frontline of a Cure
Join us for a special conversation with Alliance to Cure Cavernous Malformation founder Connie Lee as she reflects on the remarkable journey of the alliance, from her kitchen table to…
News
Statement from Recursion regarding REC-994 Trial
Recursion’s message to our patients regarding the discontinuation of the REC-994 trial: We have difficult news to share today. Recursion has made the decision to discontinue the SYCAMORE trial of…
Newly Published CCM Clinical Care Consensus Guidelines
Updated CCM Care Guidelines are now available to all doctors and patients! New recommendations include guidance on diagnosis, spinal cavernous malformations, lifestyle, hormones, and pediatric surgical considerations. Alliance to Cure’s…
The CCM Program Project Grant: An NIH-funded research success story
By Douglas Marchuk, Chair, Alliance to Cure Cavernous Malformation Scientific Advisory Board The National Institutes of Health (NIH) occasionally provides funding for a team of researchers, often from different institutions,…
