CCM Patient or Caregiver? Join our Registry.
You have the knowledge and power to advance research for a CCM cure. By joining the Cavernous Malformation Registry, you will be strengthening a critical research tool. Learn more about…
News
Watch Past Webinars on our YouTube Channel
Did you know you can catch up on most of our past webinars and many patient conference presentations on our YouTube channel anytime? This is a link to our recorded…
CCM Cure Roadmap
New CCM Cure Roadmap shows the way to a cure We have a new resource showing the overlapping steps we are taking to achieve a permanent cure for CCM. We are grateful to the Chan…
CCM 101
CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness…
Texas Children’s Becomes First Hospital in Texas with Cavernous Malformation Clinical Center Designation
The Alliance to Cure Cavernous Malformation, the leading global organization in urgent pursuit of improved care and a cure for the rare disease that causes seizures and strokes at…
