News

April Volunteers of the Month: Allison and Amber

Join us in recognizing the volunteer efforts of Amber Brown and Allison Mintz, our Volunteers of the Month for April! Their dedication and enthusiasm have breathed new life into the Greater DC Alliance to Cure group. Through their efforts in organizing engaging get-togethers like a holiday potluck and a Rare Disease Day event, Allison and…

Focused ultrasound plans, 16 new possible treatments in the lab, and more – our Spring Newsletter is here!

Read Alliance to Cure’s Spring 2024 Newsletter  Alliance to Cure’s Spring Newsletter highlights our progress towards better treatments and a cure for cavernous malformation. Read the newsletter to learn about early plans for a focused ultrasound safety trial for cavernous malformation patients, our ground-breaking preclinical treatment testing program, and more!

Texas Children’s Becomes First Hospital in Texas with Cavernous Malformation Clinical Center Designation

  The Alliance to Cure Cavernous Malformation, the leading global organization in urgent pursuit of improved care and a cure for the rare disease that causes seizures and strokes at any age, attended a ceremony on April 10 in Houston recognizing Texas Children’s Hospital as the first Clinical Center for cavernous malformation in Texas. Clinical…