Current News & Updates

Impact Report 2023

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Texas Children’s Becomes First Hospital in Texas with Cavernous Malformation Clinical Center Designation

The Alliance to Cure Cavernous Malformation, the leading global organization in urgent pursuit of improved care and a cure for the rare disease that causes seizures and strokes at…

“Biscochito,” our first children’s book, is a delightful tale written by the talented author Aditi Kantipuly and brought to life through the enchanting illustrations of Luz Adriana Manozca. This heartwarming…

Webinar: Big Picture Updates on Guidelines, Trials, and Biomarkers with Dr. Awad

Current News & Updates, Events & Opportunities

Join us for a Big Picture Update on Guidelines, Trials, and Biomarkers with Dr. Issam Awad from the University of Chicago Medical Center: Thursday, February 22nd, 2024 at 7:00 pm…

End of Year Letter

Current News & Updates

Because of you, 2023 has been a year of significant progress! 2024 looks to be even more promising. Check out Connie Lee’s End of Year letter for highlights from this…

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