In 2024, thanks to the support of a generous donor, the Alliance to Cure will host its first Family Weekend. Unlike our patient conferences, which focus on education, our Family Weekend will focus on fun, laughter, and community. When: June 28-July 1, 2024 (3 nights, 4 days) Where: Silver Bay YMCA Conference and Retreat Center…
Join us for a Caregiver Zoom Call on November 30th at 7:00 PM Eastern, 4:00 PM Pacific. We will be talking with author Sandy Tovray Greenberg about her book, Who Will Butter My Toast?: How to Create a Handbook for Caregivers. Her daughter Tovah Segelman Spring will lead us in a calming meditation. A link…
We are thrilled to recognize Judy Kogan as our Volunteer of the Month for her outstanding contributions to our organization. Judy has been our Malibu volunteer organizer for our annual Malibu walk for an incredible seven years, demonstrating unwavering dedication and commitment. Thank you for all that you do!
We are excited to announce that we have updated our patient registry to a new platform! There are two options to create an account in our new registry: Patient account-this is for affected individuals 18 years or older Caregiver account-this is for parents or legal guardians of a minor-age affected person OR a legal representative…
Read our latest newsletter with a 2023 science wrap-up, information about our new family weekend and children’s book, and much more. Autumn 2023 Newsletter
