March Newsletter Available
We have a packed issue for you, including new research, our patient registry news, research we’re funding, upcoming events, and more. Read it here.
News
Alliance to Cure Cavernous Malformation Recognizes Beth Israel Deaconess Medical Center as a CCM Clinical Center
Beth Israel Deaconess Medical Center has been recognized as a designated Clinical Center by the Alliance to Cure Cavernous Malformation for the treatment of cavernous malformations. A cavernous malformation, also known as a cerebral cavernous angioma or cavernoma, is a mulberry-shaped collection of abnormal blood vessels with thin, leaky walls, most often found…
March Webinar: Women’s Health Issues and CCM
Join us Mar 23, 2023 07:00 PM Eastern Time, 4:00 PM Pacific Time for a webinar with Dr. Kelly Flemming who will share an update on recent research on women’s health issues and CCM. There will be a Q&A as time allows. Dr. Flemming is a neurologist at the Mayo Clinic in Rochester, Minnesota, and…
Volunteer Interest Meeting
Interested in learning more about volunteering for the Alliance? We’re planning a casual meeting to learn what volunteer gigs interest our members, what skills folks have, and how we can connect you with volunteer opportunities you’ll enjoy and find fulfilling. When: Mar 9, 2023 07:00 PM Eastern Time (US and Canada) Register in advance for…
Alliance to Cure Wins Prestigious Rare Disease Organization Award
On this Rare Disease Day, we are honored to announce the National Organization for Rare Disorders (NORD) has awarded the Alliance to Cure Cavernous Malformation this year’s prestigious Abbey S. Meyers Leadership Award. There are 2000 rare disease organizations, 330+ of which qualify to be members of NORD. NORD recognizes one organization each year for…