News

CCM Family Weekend 2024

In 2024, thanks to the support of a generous donor, the Alliance to Cure will host its first Family Weekend. Unlike our patient conferences, which focus on education, our Family Weekend will focus on fun, laughter, and community. When: June 28-July 1, 2024 (3 nights, 4 days) Where: Silver Bay YMCA Conference and Retreat Center…

New Patient Registry

We are excited to announce that we have updated our patient registry to a new platform! There are two options to create an account in our new registry: Patient account-this is for affected individuals 18 years or older Caregiver account-this is for parents or legal guardians of a minor-age affected person OR a legal representative…