We have a new name! Angioma Alliance has become the Alliance to Cure Cavernous Malformation.
First, later in 2022, we will finally have our own code in the International Classification of Diseases, or the ICD-11, which is used globally to identify the illness and keep track. In the ICD-11, in all languages, the illness is called cavernous malformation. We want to embrace this to reduce confusion and make it easier to find each other.
Also, we are an Alliance to Cure. It is our mission, and it includes everyone who takes part – patients, families, friends, researchers, healthcare providers, government, and industry.
Finally, we want our members with spinal cavernous malformations to know that we see them and that they are definitely part of our organization. Our new name intentionally doesn’t include “cerebral” because lesions aren’t just in the brain.
Our tent is big and growing. And together, in the Alliance to Cure Cavernous Malformation, the cure is promised.