Online Community

Alliance to Cure Cavernous Malformation supports a large, active online community on social media and through virtual support groups. Please join us!


Main Group

We have a very active, large community on Facebook. Even if you do nothing else on Facebook, please consider joining our private Alliance to Cure Cavernous Malformation Facebook Group to give and receive support from other Alliance to Cure Cavernous Malformation members. You must request to join.

Community Alliance Groups

In addition to our main Facebook group, each Community Alliance hosts a Facebook group. Click on your state on our Community Alliance page to find the group nearest you.

Regional Groups

If there is no Community Alliance near you, we also host regional groups :


We host subgroups:


Many of our international affiliates host Facebook groups. Links to these can be found on our International Cavernoma Groups page

Zoom Support Groups

We also host a variety of cavernous malformation support groups via videoconference on Zoom. You will find the schedule on our Upcoming Events page.  If there is interest, we can create other groups as well. Please let us know your interests at

Many of our Community Alliances also host local online and in-person support groups and meetups.

Information on Social Media

Alliance to Cure Cavernous Malformation uses social media to share the latest information about research and our activities. Please follow us on: