Host an Event

Events are a great way to raise awareness and financially support the work of Alliance to Cure Cavernous Malformation - and they're fun!

Make a Difference: Host a Fundraising Event that Leaves a Lasting Impact!

“If you want good things to happen, you must be part of making them happen. A cure starts with us!” -Julie De Michiel, patient and board member

A group of about 20 people smiling during our Strides to Cure CCM 2023 walk, run, roll. The picture is a link to our Fundraising Walks page.   Golf carts lined up ready to take to the golf course. The picture is a link to our Tournaments webpage..   A group of people around a kitchen during a cooking class. The picture links to our Do What You Love fundraising page.

We are a volunteer-driven organization that cannot be supported without the efforts of countless volunteers across the country who hold fundraising events in their communities to benefit the Alliance to Cure Cavernous Malformation.

Hosting an event is an important way you can support our efforts to fund research for better treatments and a cure, while also raising awareness about cavernous malformation. In addition, events provide an opportunity to bring our community together to share their experiences and support each other. Not only do events help to raise awareness and provide support, but they also play a critical role in fundraising for the Alliance.

By hosting a fundraiser, you can help raise funds to support research programs, clinical trials, and community outreach initiatives that are all aimed at improving the lives of those living with cavernous malformations. Members have organized runs, walks, beer and wine tastings, and wine auctions. They have organized golf tournaments, paint nights, and benefit concerts. They have sent letters to family and friends to request donations instead of birthday or anniversary gifts.  The sky’s the limit!

Alliance to Cure Cavernous Malformation uses Network for Good as a fundraising platform where you can create an online fundraiser.  You can customize it with the story of your involvement and send the link to family and friends.

Not sure how to get started?  Fill out this form and we’ll reach out to help you get started! We’ll be with you to help every step of the way. You can also contact, and we can brainstorm together.  We can help you succeed with your event by recruiting committee members, creating an event registration page, providing flyers and templates, and helping get the word out!

We ask all event hosts to review, sign, and return this Event Host Agreement 30 days before your event.

We look forward to hearing from you!