Cincinnati Children’s Hospital Medical Center was named a pediatric Clinical Center of Excellence by Alliance to Cure Cavernous Malformation, a patient/family advocacy organization. The designation is awarded to clinical centers that provide quality multidisciplinary care for cavernous malformations, also known as cavernous malformations or cavernomas, and engage in cavernous malformation research.
“We are proud to be honored with this designation,” says Dr. Sudhakar Vadivelu, Director of the Cincinnati Children’s Cerebrovascular Disease Center and the Center of Excellence. “Our team is committed to providing outstanding care to families affected by cerebral cavernous malformations. We look forward to deepening our relationship with Alliance to Cure Cavernous Malformation and the national patient community.”
Cavernous malformations can occur anywhere in the body but usually cause serious problems only in the brain and spinal cord. While many children don’t have symptoms, the masses can bleed and cause neurologic problems, such as seizures and stroke-like deficits, and can sometimes be life-threatening. If the cavernous malformation bleeds, surgery may be recommended if the malformation can be safely accessed.
“We are pleased to recognize the Center of Excellence team at Cincinnati Children’s Hospital Medical Center for the outstanding care they have been providing to our families,” says Connie Lee, Psy.D., president and CEO, Alliance to Cure Cavernous Malformation. “We also appreciate the investment they have made in researching cerebral cavernous malformations, paving the way for better treatments in the future. Alliance to Cure Cavernous Malformation sets a high bar for Centers of Excellence, and Cincinnati Children’s joins a select group that has surpassed our expectations.”
At Cincinnati Children’s, patients receive care from a collaborative, highly experienced team, including a pediatric neurosurgeon and clinicians with expertise in child neurology, diagnostic neuroradiology, stroke, genetics, vascular anomalies, and blood disorders. The goal is to provide a seamless, team-based, patient-focused approach.
About Alliance to Cure Cavernous Malformation
Alliance to Cure Cavernous Malformation’s mission is to inform, support, and empower individuals affected by cavernous malformation and drive research for better treatments and a cure. Its mission is achieved through a variety of programs, including peer support, patient advocacy, a DNA/tissue bank to provide materials for the medical community, an Annual International Scientific Meeting, and direct support of research that will lead to noninvasive cures for cerebral cavernous malformations. For more information, visit Angioma.org.
About Cincinnati Children’s Hospital Medical Center
Cincinnati Children’s Hospital Medical Center serves the medical needs of infants, children, and adolescents with family-centered care, innovative research and outstanding teaching programs. For more information, visit cincinnatichildrens.org.