Arizona

Housing for Barrow Neurological Institute

Alliance to Cure Cavernous Malformation has compiled a list of Airbnb properties that are located near Barrow Neurological Institute to supplement housing options offered by the hospital. This listing does not indicate an endorsement of any of the properties.

Phoenix Airbnb Properties Near BNI

Center of Excellence (COE):

Alliance to Cure Cavernous Malformation has recognized the Barrow Neurological Institute as a Center of Excellence

Medical Director:  Dr. Michael Lawton

Medical Co-Director:  Dr. Joseph Zabramski

Phone: 1-866-374-5495

This is a dedicated line for Alliance to Cure Cavernous Malformation patients. Barrow will waive their $100 second-opinion fee if you call them using this number.

For more information about our other Centers of Excellence, please visit our information page.

Community Connections

We have a large Facebook group that is a great place to connect with other members.

We also have some smaller, more specific groups, including a group for people affected by brainstem lesions, spinal lesions, and those who are parents of affected children or are caregivers.

Please request to join our Arizona Facebook group for peer support and more information about local resources.

Upcoming Events

If you’re interested in working with us to create a local group to fundraise or for support, reach out to Linda Fuchser at Linda@AllianceToCure.org.

Our calendar shares both local events and also national opportunities. You will see that we have support groups twice a week and also CCM101 once a month as well as a monthly webinar.

Jul 29 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
CCM 101 @ Zoom
Aug 1 @ 7:00 pm – 8:00 pm
CCM 101 @ Zoom
7:00 pm
Join us the first Thursday at 7:00 PM Eastern of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get...
Aug 1 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Aug 3 @ 9:00 am – 10:00 am
New Mexico Community Monthly Zoom
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month at 9 AM MST. Follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Aug 5 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Aug 6 @ 7:00 pm – 8:00 pm
Florida Community Monthly Zoom
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
Aug 7 @ 7:00 pm – 8:00 pm
Tri-State Community Monthly Zoom
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
Aug 8 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Aug 10 @ 10:00 am – 11:00 am
NorCal Monthly Zoom Meeting
10:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday at 10 AM PST here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
Aug 12 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Aug 12 @ 3:00 pm – 4:00 pm
Arkansas/Missouri Monthly Zoom Meeting
3:00 pm
Arkansas/Missouri Community monthly Zoom meeting at 3 pm CST.  Join us on the second Monday of every month on Zoom. https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
Aug 12 @ 7:00 pm – 8:00 pm
Texas Community Monthly Zoom
7:00 pm
Texas Community Monthly Zoom. Join us on the second Monday of every month at 7 PM CST at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
Aug 13 @ 7:00 pm – 8:00 pm
Michigan Community Monthly Zoom
7:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday at 7 PM EST of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
Aug 14 @ 7:00 pm – 8:00 pm
Greater DC Community Monthly Zoom
7:00 pm
  Greater DC Community monthly Zoom. Join us every second Wednesday of the month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/85872445210?pwd=eVJpUnFZRUt5K3A3anhFLzlERG9SQT09  
Aug 15 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Aug 19 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Aug 19 @ 7:00 pm – 8:00 pm
Colorado Alliance to Cure Meet Up
7:00 pm
Colorado Community monthly Zoom meeting. Join us every third Monday of the month at 7 PM MST here: https://us06web.zoom.us/j/87585957847?pwd=d3JsZjdUam5XYU83WXJQYTUwVU9aZz09
Aug 20 @ 3:00 pm – 4:00 pm
Spinal Community Monthly Zoom
3:00 pm
Spinal Community monthly Zoom. Join us on the third Tuesday of the month at 12:00 pm PST, 2 PM CST, 3 PM EST here at this link: https://us06web.zoom.us/j/88055060667?pwd=dlIxaEQxNXFjeDFhYlFFblRCNTIwQT09
Aug 20 @ 7:00 pm – 8:00 pm
New England Community Monthly Zoom
7:00 pm
New England Community monthly Zoom. Join us on the third Tuesday at 7 PM EST of every month at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09
Aug 22 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Aug 26 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Aug 26 @ 6:30 pm – 7:30 pm
Northwest Community Monthly Zoom
6:30 pm
Northwest Community monthly Zoom. Join us every fourth Monday of the month at 6:30 PM PST. Follow the link: https://us06web.zoom.us/j/82937886165?pwd=UUszVEpmNERTQjZMZVhrVzlJUWoyQT09
Aug 29 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Sep 2 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Sep 3 @ 7:00 pm – 8:00 pm
Florida Community Monthly Zoom
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
Sep 4 @ 7:00 pm – 8:00 pm
Tri-State Community Monthly Zoom
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
CCM 101 @ Zoom
Sep 5 @ 7:00 pm – 8:00 pm
CCM 101 @ Zoom
7:00 pm
Join us the first Thursday at 7:00 PM Eastern of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get...
Sep 5 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Sep 7 @ 9:00 am – 10:00 am
New Mexico Community Monthly Zoom
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month at 9 AM MST. Follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Rhythms of Hope-Concerts for Cavernous Malformation
5:00 pm
Rhythms of Hope combines the power of virtual performance with the warmth of in-person gatherings to raise awareness and support for those affected by cavernous malformations. This event brings together talented musicians and passionate advocates...