Arizona

Housing for Barrow Neurological Institute

Alliance to Cure Cavernous Malformation has compiled a list of Airbnb properties that are located near Barrow Neurological Institute to supplement housing options offered by the hospital. This listing does not indicate an endorsement of any of the properties.

Phoenix Airbnb Properties Near BNI

Community Connections

Megan Loden

Chris Coates

Tricia Gutierrez Straface

Email: arizona@alliancetocure.org

Please contact Lindsay Ramirez at linda@alliancetocure.org if you are interested in volunteering in Arizona.  participating or if you are interested in holding an event in your community.

Please request to join our Arizona Facebook group for peer support and more information about local resources.

Center of Excellence (COE):

Alliance to Cure Cavernous Malformation has recognized the Barrow Neurological Institute as a Center of Excellence

Medical Director:  Dr. Michael Lawton

Medical Co-Director:  Dr. Joseph Zabramski

Phone: 1-866-374-5495

This is a dedicated line for Alliance to Cure Cavernous Malformation patients. Barrow will waive their $100 second-opinion fee if you call them using this number.

For more information about our other Centers of Excellence, please visit our information page.

upcoming events

Stay tuned for local events coming soon!

Feb 9 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Feb 11 @ 10:00 am – 11:00 am
10:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
Feb 13 @ 2:00 pm – 3:00 pm
2:00 pm
Arkansas/Missouri Community monthly Zoom meeting.  Join us on the second Monday of every month at this link: https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
Feb 13 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Feb 13 @ 7:00 pm – 8:00 pm
7:00 pm
Texas Community, join us every second Monday of the month at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
Feb 14 @ 7:00 pm – 8:00 pm
7:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
Feb 16 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Feb 16 @ 8:00 pm – 9:00 pm
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Feb 20 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Feb 20 @ 7:00 pm – 8:00 pm
7:00 pm
Colorado Community monthly Zoom meeting. Join us every third Monday of the month here: https://us06web.zoom.us/j/87585957847?pwd=d3JsZjdUam5XYU83WXJQYTUwVU9aZz09
Feb 21 @ 7:00 pm – 8:00 pm
7:00 pm
New England Community monthly Zoom. Join us on the third Tuesday of every month at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09
Feb 21 @ 3:00 pm – 4:00 pm
3:00 pm
Spinal Community monthly Zoom. Join us on the third Tuesday of the month here at this link: https://us06web.zoom.us/j/88055060667?pwd=dlIxaEQxNXFjeDFhYlFFblRCNTIwQT09
Feb 23 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Feb 27 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Feb 27 @ 7:00 pm – 8:00 pm
7:00 pm
Northwest Community monthly Zoom. Join us every fourth Monday of the month. Follow the link: https://us06web.zoom.us/j/82937886165?pwd=UUszVEpmNERTQjZMZVhrVzlJUWoyQT09
Mar 1 @ 7:00 pm – 8:00 pm
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
Mar 2 @ 8:00 pm – 9:00 pm
8:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Mar 2 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Mar 4 @ 9:00 am – 10:00 am
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month, follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Mar 6 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Mar 7 @ 7:00 pm – 8:00 pm
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
Mar 9 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Mar 11 @ 10:00 am – 11:00 am
10:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
Mar 13 @ 2:00 pm – 3:00 pm
2:00 pm
Arkansas/Missouri Community monthly Zoom meeting.  Join us on the second Monday of every month at this link: https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
Mar 13 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Mar 13 @ 7:00 pm – 8:00 pm
7:00 pm
Texas Community, join us every second Monday of the month at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
Mar 14 @ 7:00 pm – 8:00 pm
7:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
Mar 16 @ 9:00 pm – 10:00 pm
9:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Mar 16 @ 9:00 pm – 10:00 pm
9:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Mar 20 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.