California Community Connections

We are a group of Alliance to Cure Cavernous Malformation members and friends who provide mutual support, reach out to the medical community, and organize events.

Lindsay Ramirez

Maryann Walker

Judith Kogan

Linda Fuchser

Kristen Fowler

To contact us, please email

You can also become a member of our Facebook group to join our group discussion.

Centers of Excellence

University of California San Francisco

Central Scheduling: (415) 353-2529

Medical Directors: Dr. Adib Abla and Dr. Nerissa Ko

Stanford Health Care

Phone: 650-723-5575

Medical Director and Cerebrovascular Neurosurgeon:  Gary Steinberg, MD, PhD

upcoming events

Please visit our Calendar for events online and around the country.

National Community Connections

We have a large Facebook group that is a great place to connect with other members.

We also have some smaller, more specific groups, including a group for people affected by brainstem lesions, spinal lesions, and those who are parents of affected children or are caregivers.