Local Community Connections
There is a dedicated group of volunteers in the Tri-State area.
Reach out to Linda Fuscher to connect with other area volunteers: firstname.lastname@example.org
You can also become a member of our Facebook group to join our group discussion.
Pediatric Center of Excellence (COE):
Alliance to Cure Cavernous Malformation has recognized Boston Children’s Hospital as a Center of Excellence.
Medical Director and Pediatric Cerebrovascular Neurosurgeon: Edward Smith, MD
Phone: (617) 919-1379
For more information about our other Centers of Excellence, please visit our information page.
Adult Center of Excellence (COE):
Alliance to Cure Cavernous Malformation has recognized Penn Medicine, Hospital of the University of Pennsylvania as a Center of Excellence.
Medical Director and Cerebrovascular Surgeon: Dr. Jan-Karl Burkhardt
Please visit our Calendar for events online and around the country.