Clinical Centers

University of Virginia

Medical Director: Dr. Min Park

Phone: (434) 924-2735

Penn Medicine, Hospital of the University of Pennsylvania 

Medical Director and Cerebrovascular Surgeon: Dr. Jan-Karl Burkhardt

Phone: 215-662-3487


The Alliance to Cure Cavernous Malformation has a large Facebook group that is a great place to connect with other members from around the country and around the world.

We also have some smaller, more specific groups, including a group for people affected by brainstem lesionsspinal lesions, and those who are parents of affected children or are caregivers.


If you’re interested in working with us to create a local group to fundraise or for support, reach out to Linda Fuchser at

Our calendar shares both local events and also national opportunities. You will see that we have support groups twice a week and also CCM101 once a month, as well as monthly webinars and community gatherings both in person and virtually.

If there are no events in your state, you will see events online and around the country.