An Eastern PA/Delaware/South Jersey Community Alliance is close to forming.  Please let us know at if you are interested in joining!

Currently, the nearest Community Alliance to you is:

Greater Washington DC Community Alliance

We are a group of Alliance to Cure Cavernous Malformation members and friends who provide mutual support, reach out to the medical community, and organize events. Geographically, our group includes Washington, DC, northern Virginia, and Maryland.

Greg Upwall – Chair

Carlos Casaus – Vice-Chair

Recruiting! – Treasurer

Cameron Schmitz – Events Committee Chair

Kristine Wood – Outreach and Engagement Committee Chair

To contact us, please email

You can also become a member of our Facebook group to join our group discussion.

Clinical Centers

University of Virginia

Medical Director: Dr. Min Park

Phone: (434) 924-2735

upcoming events

Please see our Calendar for events online and around the country.