Community Alliance

There is not yet a formal Idaho Community Alliance, but we would love to know if you are interested in joining others to form one! In the meantime, some of our members in Idaho participate in the Pacific Northwest Alliance to Cure Cavernous Malformation Community.

Recruiting – Chair

Jennifer Roney – Vice-Chair

Amy Clarke – Treasurer

Kathy Johnson – Events Committee Chair

Noel Beeler – Outreach and Engagement Committee Chair

To contact us, please email

You can also become a member of their Facebook group to join the group discussion.

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you! Please contact Lindsay Ramirez at to let her know you are interested in participating.

Please also request to join our Alliance to Cure Cavernous Malformation Pacific Facebook Group for peer support and more information about local resources.

Center of Excellence

University of California San Francisco

Central Scheduling: (415) 353-2529

Medical Directors: Dr. Adib Abla and Dr. Nerissa Ko

upcoming events

Visit our Calendar to see events online and all over the country.