Community Alliance

We are close to forming a New England Community Alliance, and we would love to know if you are interested in joining! Contact Darla Clayton at to let her know.

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you!

Please contact Darla Clayton at to let her know you are interested in participating or if you are interested in holding an event in your community.

In the meantime, please request to join our Northeast Facebook group for peer support and more information about local resources.

Center of Excellence (COE):

Alliance to Cure Cavernous Malformation has recognized Boston Children’s Hospital as a Center of Excellence.

Medical Director and Pediatric Cerebrovascular Neurosurgeon: Edward Smith, MD

Phone: (617) 919-1379

For more information about our other Centers of Excellence, please visit our information page.

upcoming events