Family Rare Disease Day Zoom!

When:
February 27, 2022 @ 5:00 pm – 6:00 pm America/New York Timezone
2022-02-27T17:00:00-05:00
2022-02-27T18:00:00-05:00

Please note the start time for this event is 5pm eastern, 4pm central, 3pm mountain and 2pm pacific.

Join us for some family fun to celebrate Rare Disease Day! We will be baking some super simple cookies together (required ingredient list at the bottom of the page) and then doing a painting project.

If you’d like us to mail you mini canvases with a rare disease day design for the painting project please sign up on the following form. Please register by February 16th to allow us time to send out the materials before the event. Parents and kids are welcome to participate in the painting project. You will need to provide some supplies, washable markers, watercolor paints, or other paints, a paintbrush, and a cup of water. The project is suitable for all ages, toddlers on up (with some help for our littlest members of course). Projects kits can only be mailed in the US at this time, however, there will be a digital download of a similar project available.

Make sure you also register for the zoom event here:
https://zoom.us/meeting/register/tJItceuvpzosH9aSiVq9G1SdVknLIE70pl7D

Rare Disease Family Event
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Coconut Macaroon Recipe

1 and 1/3 cups sweetened coconut flakes

1/3 cup sugar

2 Tbsp All-Purpose Flour (almond flour works too if you’re gluten free)

2 egg whites

1 tsp vanilla

pinch of salt