What is the CCM Biobank?
The CCM Biobank program helps scientists access biological samples for their research studies. The CCM Biobank stores blood, CCM tissue, saliva, urine, and fecal samples from individuals diagnosed with Cavernous Malformation. We also store associated medical information. These research tools (de-identified samples and clinical records) are available to scientists for approved research studies.
If you participate, how will your samples be used?
Researchers and clinical trialists want to use your samples and medical information to understand the disease’s biology better and find future CCM treatments.
How can you participate?
If you want to learn more and provide your biological samples to the CCM Biobank, please read and sign the CCM Biobank consent form on the CCM Registry website.