Celebrate Together for a Cure: Call for Hosts

We are excited to share that Alliance to Cure Cavernous Malformation is planning a large national event, and we want to offer you the opportunity to be part of accelerating a cure.  

Our Celebrate Together for a Cure extravaganza will be held on Sunday, August 29th, simultaneously, at 100 or more member parties around the country. We’re asking our community to become part of this incredible event by hosting a small gathering or by co-hosting a larger event. Each event site will have access to the world’s largest-ever “Celebrate Together for a Cure” live video broadcast and fundraiser, and we’re even working on technology to allow each party site to pop on-air to say hi. You have the opportunity to be part of something much bigger (and even more fun) than just your event.

Why now? We’re poised at a threshold in cavernous malformation research. The drug pipeline is full of promising treatments that have worked well in academic laboratory settings. You are a critical part of accelerating a cure. With funding and your help, we can prioritize the medicines that should be pushed forward, perform final experiments, and attract industry to our cause. Through you, there will be at least one effective, approved treatment by 2025 and a CURE by 2030.

Join us for this one day, as one community, all celebrating together for a cure for cavernous malformation. 

If you’re willing, we know you would be a great host for one of our nationwide events. Over the next few weeks, we can provide you with all the information you would need to decide whether you’d like to host a fun, successful celebration.

If you’re interested in learning more about being a host (or co-host) for this exciting event, please fill out this Host Interest Form. The survey isn’t an absolute commitment. It just lets us know you’re interested so we can send you more information. 

For more information, please see our Frequently Asked Questions.