Resources for Parents

The following websites and videos may be helpful for parents of children affected by cavernous malformation.

Pediatric Centers of Excellence

Boston Children’s Hospital has an excellent website to find more information about parenting children affected with Cavernous Malformation.

The Cincinnati Children’s Hospital website is also a great resource.


On the Wolfson Children’s Hospital website, you can learn about Cavernous Malformation treatment. There are stories of affected children at the bottom of the page.

Short educational Videos for parents






Webinars on Pediatric Cavernous Malformation


Webinar: Dr. Ed Smith Talks about Pediatric CCM and Surgical Advances

Webinar: Dr. Vadivelu Talks About Surgical Perspectives

Talking to Kids about Cavernous Malformation

Understanding & Supporting Children with CCM