Community Alliance
There is not yet a local Community Alliance, but we would love to know if you are interested in joining others to form one!
Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you!
Please contact Darla Clayton at darla@alliancetocure.org to let her know you are interested in participating or if you are interested in holding an event in your community.
In the meantime, please request to join our Southeast Facebook group for peer support and more information about local resources.
Center of Excellence
The CCM Center of Excellent nearest to you is:
University of Miami/Jackson Health System
upcoming events online and around the country
Nov 30 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Dec 2 @ 5:00 am – 6:00 am
5:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month, follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Dec 4 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Dec 5 @ 3:00 pm – 4:00 pm
3:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
Dec 6 @ 3:00 pm – 4:00 pm
3:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
Dec 7 @ 7:00 pm – 8:00 pm
7:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Dec 7 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Dec 9 @ 6:00 am – 7:00 am
6:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
Dec 11 @ 11:00 am – 12:00 pm
11:00 am
Arkansas/Missouri Community monthly Zoom meeting. Join us on the second Monday of every month at this link: https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
Dec 11 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Dec 11 @ 3:00 pm – 4:00 pm
3:00 pm
Texas Community, join us every second Monday of the month at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
Dec 12 @ 3:00 pm – 4:00 pm
3:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
Dec 13 @ 3:00 pm – 4:00 pm
3:00 pm
Greater DC Community monthly Zoom. Join us every second Wednesday of the month. Follow the link: https://us06web.zoom.us/j/85872445210?pwd=eVJpUnFZRUt5K3A3anhFLzlERG9SQT09
Dec 14 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Dec 14 @ 8:00 pm – 9:00 pm
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Dec 18 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Dec 18 @ 3:00 pm – 4:00 pm
3:00 pm
Colorado Community monthly Zoom meeting. Join us every third Monday of the month here: https://us06web.zoom.us/j/87585957847?pwd=d3JsZjdUam5XYU83WXJQYTUwVU9aZz09
Dec 19 @ 3:00 pm – 4:00 pm
3:00 pm
New England Community monthly Zoom. Join us on the third Tuesday of every month at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09
Dec 19 @ 3:00 pm – 4:00 pm
3:00 pm
Spinal Community monthly Zoom. Join us on the third Tuesday of the month here at this link: https://us06web.zoom.us/j/88055060667?pwd=dlIxaEQxNXFjeDFhYlFFblRCNTIwQT09
Dec 21 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Dec 25 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Dec 25 @ 3:00 pm – 4:00 pm
3:00 pm
Northwest Community monthly Zoom. Join us every fourth Monday of the month. Follow the link: https://us06web.zoom.us/j/82937886165?pwd=UUszVEpmNERTQjZMZVhrVzlJUWoyQT09
Dec 28 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Jan 1 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Jan 4 @ 7:00 pm – 8:00 pm
7:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Jan 4 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Jan 8 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Jan 10 @ 3:00 pm – 4:00 pm
3:00 pm
Greater DC Community monthly Zoom. Join us every second Wednesday of the month. Follow the link: https://us06web.zoom.us/j/85872445210?pwd=eVJpUnFZRUt5K3A3anhFLzlERG9SQT09
Jan 11 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Jan 15 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.