Community Alliances

Three Rivers Alliance to Cure Cavernous Malformation Community

Founded in 2020, the Three Rivers Alliance to Cure Cavernous Malformation Community includes members in Pittsburgh, Youngstown, OH, and Morgantown, WV.

Chair: Karen Snavely
Treasurer: Patricia Kosikowski
Peer Support/Community Outreach Committee Chair: Michelle Shaffer
Events Committee Chair: Darla Clayton

Please contact us at 3rivers.alliance@gmail.com or through our Facebook group if you live anywhere in the Three Rivers region and would like to join.

 Attention Ohio River Valley!

We are close to forming an Ohio River Valley Community Alliance that includes Cincinnati and parts of Kentucky and Indiana. Please contact Darla Clayton at darla@alliancetocure.org if you’d like to join!

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 4-5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you! Please contact Darla Clayton at darla@alliancetocure.org to let her know you are interested in participating.

In the meantime, please request to join our Alliance to Cure Cavernous Malformation Great Lakes/Northern Plains Facebook Group for peer support and more information about local resources.

Center of Excellence

The nearest CCM Centers of Excellence are:

Cincinnati Children’s Hospital Medical Center

University of Chicago Medicine

upcoming events

Please see our Calendar for a full list of events online and around the country.