Alliance to Cure Cavernous Malformation has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. On the first Thursday of each month we host a meeting for newly diagnosed members and their loved ones to learn more. Support groups are facilitated by Lindsay Ramirez and Darla Clayton. Please contact Lindsay Ramirez for the link to participate. We are considering adding other break-outs to this group so that those with shared interests, e.g., parents or young people, can talk separately.
We also have a quarterly group specific to those with spinal cavernous malformation. Please contact firstname.lastname@example.org to receive information about the next meeting.
Some of our Community Alliances host regional groups. Please check your state’s information on our Local Community Alliance page.