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Alliance to Cure Cavernous Malformation - because brains shouldn't bleed
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  • About Alliance to Cure Cavernous Malformation
    ▼
    • Role of Alliance to Cure Cavernous Malformation – FAQ
    • Our Values
    • Mission, Vision, Goals
    • Alliance to Cure Cavernous Malformation Programs
    • Funding Priorities
    • Board of Directors
    • Scientific Advisory Board
    • Medical Advisory Board
    • Our Team
    • Contact Us
  • Patient Registry
  • Legislative Advocacy
    ▼
    • National Legislation
    • State Legislation
  • International
    ▼
    • International Organizations
  • For Professionals
    ▼
    • Clinicians
      ▼
      • CCM Care Guidelines
      • CCM Centers of Excellence – Criteria and Application
      • Free Genetic Testing Program
    • Researchers
      ▼
      • CCM International Scientific Meeting
      • Study Recruitment
  • Upcoming Events
  • Store
  • Newly Diagnosed
    ▼
    • Cavernous Malformation Fast Facts
    • 20 Cavernous Malformation Questions Answered
    • Incidental and Asymptomatic Cavernous Malformation
    • Questions to Ask Your Doctor
    • Centers of Excellence
    • Community
    • Research & Clinical Trials
    • CCM Care Guidelines
    • Glossary
  • Cavernous Malformation In Depth
    ▼
    • Symptoms and Special Topics
      ▼
      • Hemorrhage
      • Seizure
      • Headache
      • Fatigue
      • Brainstem Lesions
      • Spinal Cord Lesions
      • Central Pain Syndrome
      • Hypertrophic Olivary Degeneration
    • Developmental Venous Anomaly
    • Imaging
    • Lifestyle
      ▼
      • Vitamin D
      • Microbiome/Gut Health
      • Sleep/Sleep Apnea
      • Blood Thinners
      • Under Investigation
    • Surgery
      ▼
      • Open Brain/Spinal Surgery
      • Minimally Invasive Surgery
      • Minimally Invasive and Non-Invasive Techniques Under Investigation
      • Radiosurgery
    • Genetic Testing
      ▼
      • Do I Have Sporadic CCM?
      • Why Be Tested?
      • Genetic Testing Labs
      • Free Genetic Testing Program
  • Genetics
    ▼
    • Genetics of Cavernous Malformation
    • Common Mutations
      ▼
      • CCM1 Common Hispanic Mutation
      • CCM2 Ashkenazi Mutation
      • CCM2 Exon 2-10 Deletion
    • CCM3 Syndrome
  • Care & Community
    ▼
    • Care
      ▼
      • Centers of Excellence
      • Free Genetic Testing Program
      • Pregnancy and Pediatrics
        ▼
        • Pregnancy with Cavernous Malformation
        • Pediatrics
          ▼
          • Cavernous Malformation And Children
          • Cavernous Malformation and School
      • Upcoming Surgery
        ▼
        • Preparing for Surgery
        • Things for the Hospital
        • Emotional Support
        • Caregiver Information
      • Rehabilitation
        ▼
        • Types of Rehabilitation
        • Cognitive Rehabilitation
        • Vocational Rehabilitation
    • Community
      ▼
      • Local Community Connections
      • Online Community
      • Breaking Barriers for Black CCM Health
      • Member Blogs/Books/Stories
      • Events & Opportunities
      • Calendar
      • Volunteer
    • Resources
      ▼
      • General Resources
      • Disability Resources
      • Financial/Insurance Resources
  • Research & Clinical Trials
    ▼
    • Participate in Research
      ▼
      • Cavernous Malformation Patient Registry
      • BVMC Natural History
      • Biomarker Development
      • Alliance to Cure Cavernous Malformation Historical Projects
    • Participate in Trials
      ▼
      • Clinical Trial Finder
      • REC-994
      • Atorvastatin Trial
      • Trial Readiness Project
      • Clinical Trial FAQ
      • FDA Listening Session
    • Current Research
      ▼
      • Research You Are Funding
      • Treatments in Development
      • Research Around the World
  • News & Archives
    ▼
    • Current News & Updates
    • Events & Opportunities
    • Our Newsletters
  • Ways to Give
    ▼
    • Donate Today
    • 2022 End of Year Letter
    • Online Fundraising
    • Host an Event
    • How We Use Your Donations
    • Planned Giving
    • Donate Your Car
    • Support While You Shop or Sell
    • Sponsorships
    • Thank You to Our Major Donors!
  • Like Alliance to Cure Cavernous Malformation on Facebook
  • Follow Alliance to Cure Cavernous Malformation on Twitter
  • Follow Alliance to Cure Cavernous Malformation on Instagram
  • Watch the Alliance to Cure Cavernous Malformation YouTube Channel

Autumn Newsletter Now Online

October 27, 2023 | Current News & Updates

Read our latest newsletter with a 2023 science wrap-up, information about our new family weekend and children’s book, and much more.

 

Autumn 2023 Newsletter

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Lurie Children’s Hospital recognized as CCM Clinical Center
New Patient Registry

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  • Follow Alliance to Cure Cavernous Malformation on Instagram
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