Events & Opportunities

Please also check our Calendar for a complete view of what’s in store.

CCM Patient-Expert Course Launched!

Be recognized for what you know! Alliance to Cure Cavernous Malformation patients and families often become experts in cavernous malformation (CCM) out of necessity.  Alliance to Cure Cavernous Malformation offers a structured way to facilitate learning about the illness to improve medical decision-making and peer support through our Patient-Expert Certificate Program. This 5-hour multimedia interactive…

Help the Alliance to Cure Cavernous Malformation Community by sharing a recipe for the 3rd Edition of the CCM Healthy Cookbook! In light of research indicating that diet, specifically emulsifier and artificial preservative use, has a negative effect on the gut lining and cavernous malformation health, we are soliciting recipe submissions for a cookbook to…

Webinar – Dr. Jan Burkhardt, Penn Medicine – CCM Clinical Decision-Making

Date/Time:  July 29 at 7 pm ET, 4 pm PT.  Please join Dr. Jan-Karl Burkhardt, cerebrovascular neurosurgeon at the University of Pennsylvania Medicine, for a discussion of CCM clinical decision-making. Dr. Burkhardt will review factors taken into consideration when deciding between surgery versus conservative management of a cavernous malformation lesion. There will be an opportunity…