Minnesota

Community Alliance

We are close to forming a Minnesota Community Alliance, and we would love to know if you are interested in joining!  Contact Lindsay Ramirez at lindsay@alliancetocure.org to let her know.

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 4-5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you!

Please contact Lindsay Ramirez at lindsay@alliancetocure.org to let her know you are interested in participating or if you are interested in holding an event in your community.

In the meantime, please request to join our Great Lakes/Central Plains Facebook group for peer support and more information about local resources.

Center of Excellence (COE):

Alliance to Cure Cavernous Malformation has recognized Mayo Clinic Hospital – St. Mary’s Campus, Rochester as a Center of Excellence.

Phone:  (507) 538-1036

Medical Director and Neurologist: Dr. Kelly Fleming 

For more information about our other Centers of Excellence, please visit our information page.

upcoming events online and around the country

Mar 28 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 1 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Apr 2 @ 7:00 pm – 8:00 pm
Florida Community Monthly Zoom
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
Apr 3 @ 7:00 pm – 8:00 pm
Tri-State Community Monthly Zoom
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
CCM 101 @ Zoom
Apr 4 @ 7:00 pm – 8:00 pm
CCM 101 @ Zoom
7:00 pm
Join us the first Thursday at 7:00 PM Eastern of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get...
Apr 4 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 6 @ 9:00 am – 10:00 am
New Mexico Community Monthly Zoom
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month at 9 AM MST. Follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Apr 8 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Apr 8 @ 3:00 pm – 4:00 pm
Arkansas/Missouri Monthly Zoom Meeting
3:00 pm
Arkansas/Missouri Community monthly Zoom meeting at 3 pm CST.  Join us on the second Monday of every month on Zoom. https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
Apr 8 @ 7:00 pm – 8:00 pm
Texas Community Monthly Zoom
7:00 pm
Texas Community Monthly Zoom. Join us on the second Monday of every month at 7 PM CST at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
Apr 9 @ 7:00 pm – 8:00 pm
Michigan Community Monthly Zoom
7:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday at 7 PM EST of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
Apr 10 @ 7:00 pm – 8:00 pm
Greater DC Community Monthly Zoom
7:00 pm
  Greater DC Community monthly Zoom. Join us every second Wednesday of the month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/85872445210?pwd=eVJpUnFZRUt5K3A3anhFLzlERG9SQT09  
Apr 11 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 13 @ 10:00 am – 11:00 am
NorCal Monthly Zoom Meeting
10:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday at 10 AM PST here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
Apr 15 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Apr 15 @ 7:00 pm – 8:00 pm
Colorado Alliance to Cure Meet Up
7:00 pm
Colorado Community monthly Zoom meeting. Join us every third Monday of the month at 7 PM MST here: https://us06web.zoom.us/j/87585957847?pwd=d3JsZjdUam5XYU83WXJQYTUwVU9aZz09
Apr 16 @ 3:00 pm – 4:00 pm
Spinal Community Monthly Zoom
3:00 pm
Spinal Community monthly Zoom. Join us on the third Tuesday of the month at 12:00 pm PST, 2 PM CST, 3 PM EST here at this link: https://us06web.zoom.us/j/88055060667?pwd=dlIxaEQxNXFjeDFhYlFFblRCNTIwQT09
Apr 16 @ 7:00 pm – 8:00 pm
New England Community Monthly Zoom
7:00 pm
New England Community monthly Zoom. Join us on the third Tuesday at 7 PM EST of every month at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09
Apr 18 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 18 @ 8:00 pm – 9:00 pm
Monthly Parent Group
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Apr 22 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Apr 22 @ 6:30 pm – 7:30 pm
Northwest Community Monthly Zoom
6:30 pm
Northwest Community monthly Zoom. Join us every fourth Monday of the month at 6:30 PM PST. Follow the link: https://us06web.zoom.us/j/82937886165?pwd=UUszVEpmNERTQjZMZVhrVzlJUWoyQT09
Apr 25 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 29 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
May 1 @ 7:00 pm – 8:00 pm
Tri-State Community Monthly Zoom
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
CCM 101 @ Zoom
May 2 @ 7:00 pm – 8:00 pm
CCM 101 @ Zoom
7:00 pm
Join us the first Thursday at 7:00 PM Eastern of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get...
May 2 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
May 4 @ 9:00 am – 10:00 am
New Mexico Community Monthly Zoom
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month at 9 AM MST. Follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
May 6 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
May 7 @ 7:00 pm – 8:00 pm
Florida Community Monthly Zoom
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09